Cancer Stinks!

On October 5, 2011, I went into the McKay Dee surgical center in Ogden to have my tonsils removed. Instead, the doctors found a cancerous tumor growing behind my tonsils. It's called "Nasopharyngeal Rhabdomyosarcoma" and I'm told it's curable about 80% of the time for someone like me. It's going to be a long road, but I think it's going to be 100%.

Wednesday, March 28, 2012

Make A Wish!

Last week was an emotional week for me. Jeremy was doing great, the best he has done since he was diagnosed. I was falling apart. I was constantly on the verge of tears. I have been so focused on caring for Jeremy and "keeping it together", that I have not had time or energy to deal with my emotions. While he was doing well, all my buried emotions surfaced. A friend told me that I needed to complete the grieving process and I needed to cry and let it all out. I had a week of healthy crying and feel much better! I want to thank those whose shoulders I cried on. It is great to have such wonderful support!



While Jeremy was waiting for chemo, he had the opportunity to paint a ceiling tile for one of the operating rooms. He painted a picture of "Mom" fishing. Which is funny, since I don't fish! He started out painting a picture of ice fishing with green snow. He changed his mind and said it is now "regular" fishing with a sun. It is a great representation of our Spring weather! 

Monday night Jeremy and I were reading bedtime stories. When I said "Good night", he clung to me and hugged me real tight. I asked him what was wrong. When he did not answer, I asked him if it was because he had to stay over night at the hospital for chemo. He nodded his head yes. Jeremy will talk with me about how he is feeling and although he does not like chemo or staying at the hospital overnight, he cooperates, is patient, and meekly bears it. He knows that he has to do it to cure the cancer. I understand how he feels. It is getting more difficult each time. We really had a hard time managing his nausea last night. He was on four different nausea medication and he was still throwing up or dry heaving all night and morning. He also had his usual low grade fever (he has one almost every VAC chemo). Even though he is so sick we still have to wake him up every two hours to go to the bathroom (because of the toxicity of the Cytoxan, he is pumped with IV fluids to flush the chemo out of his bladder). Through it all he does not complain. My mom stopped by after work and we played games with Jeremy while his chemo drugs were being administered through his IV. He was laughing and having so much fun "winning" us at the matching game. I had the pink basin close by waiting for the inevitable. Sure enough, after the Cytoxan was administered Jeremy went from laughing and playing to sick and throwing up. My mom said that she cried all the way home and could not stop thinking about Jeremy and what he has to endure. 


Dr. Spraker told us that Jeremy's cancer qualifies for Make A Wish. The hospital notified Make A Wish about Jeremy.  A few weeks ago Jeremy received a special package in the mail. It was an invitation for Jeremy to come to the Wishing Castle and make a wish, with the invitation was a key. He was instructed to bring the key to unlock the door to the special wishing place. Last Saturday we went to the Make A Wish Castle for Jeremy to request his wish.


When we arrived, there was a special sign that read "Welcome to a Wishing Place Jeremy! He was so excited to see his name on the sign! Jeremy is holding up his special key. 


Playing a "getting to know you" game.


Jeremy's key opened up the door to the Wishing Place.


Jeremy submitting his wish. He was instructed to make a wish #1 and a wish #2. His first wish is to fly in an airplane and meet Mickey Mouse in Disney World. His second wish is a remote control car. He did get a remote control car for Christmas....so the family is  hoping for the 1st wish!


Jeremy placing his wish on top of the cone, making his wish official.  Now we wait two to three weeks to see if Jeremy's wish has been granted. 


Our family's wish for Jeremy is for him to be cancer free by his 6th birthday! 









1 comment:

  1. Good luck on the wish! My brother and his family were flown to FL to the Give Kids the World Village while I was working at WDW. It truly was a wonderful experience. Although the circumstances for getting the vacation aren't the greatest it still makes some of the best memories possible for the entire family. It seems that just for a moment all your cares dissappear and you are a "normal" family again. Let us know if Jeremy is selected!

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