End of Chemo Evaluation Scans

We have been at the hospital the last two days for Jeremy's scans. It is exhausting! The sedation made Jeremy very sick and his blood pressure was low. It was a long day. Jeremy's scans look good. There is some scaring in his left sinus from the radiation and also remains from the tumor. There was a marking that showed up on the bone scan on his sacrum (tail bone). Dr. Spraker said it is nothing to worry about, but ordered an x ray to be safe. She said that we could do the x ray when he comes in to have his port and G-tube removed in about two-three weeks. He is also going to have a hearing test, hopefully before school starts. The radiation may have caused some permanent hearing loss in his left ear. Jeremy's ANC is at a normal range, but he is still vulnerable and at a higher risk to sickness and infections and will be for many months. He will continue taking an antibiotic for the next three months to help him with this.We have started weaning him off his G-tube and it is definitely a challenge! Children have strong memories of bad food experiences. Unfortunately chemo provided many bad food experiences for Jeremy. It is going to take time, he is an extremely picky eater right now. Jeremy will have scans every three months for two years, scans every six months for five years and then scans once a year. This first year is the most critical. It is a year of patiently waiting and hoping that the cancer does not come back. We also hope that a new cancer that can be caused from the radiation or chemo does not develop.

Jeremy was granted his wish and we are going to Disney World this month. He is so excited! The whole family is excited! He is also registered for 1st grade and is looking forward to going to school.