Our emotions are very tender today. We feel so humble and grateful for the divine tender mercies and blessings we have received through this very difficult and trying journey. We feel that from the very beginning we have been guided and strengthened through prayer to deal with this challenge. We are so thankful for your love, support, and prayers, for our little Jeremy. We feel that those prayers have been answered and we have been granted a miracle. Yesterday Jeremy had an MRI and CT scan. We met with Dr. Spraker afterwards to discuss the results. Jeremy's tumor has shrunk to a size that is no longer measurable. It is now stranulated and confined to the left sinus. The nasal passages are clear and there is no discrete mass and no evidence for new enhancing tumor. Contrast is showing the tumor to be dead. We asked Dr. Spraker if this means that Jeremy's cancer will be in remission at the end of chemotherapy in July. She said with these results, she considers him in remission now. She continued to say that because we have noticed his increased activity, appetite and energy over the past two weeks, this confirms that the chemicals normally released by a tumor such as this, have stopped. (He made the full three hours at church this last week for the first time since last summer.) As he completes these last three months of chemotherapy, the tumor will continue to shrink and will become minuscule. These results are miraculous! Surgery was not an option and the "plan" was that Jeremy would have a dead tumor at the end of chemotherapy. Though we have to finish Chemo, it seems we have the dead tumor now.
We believe this experience started with a miracle but because of the emotions and emergent nature of what was happening we did not record the beginning of it all. So we have this record in the future to look back on, this is what happened...
This morning I have been reflecting on last August when Jeremy started snoring. He had just started Kindergarten. I was so glad that he was in afternoon kindergarten, because the snoring was interrupting his sleep (and James' since they shared a room). He seemed to be getting louder and more tired. I had heard that tonsils can cause snoring and felt that I should take him to the doctor's for a check up. The morning of September 12, 2011, I felt a strong impression that I should make a doctor's appointment for Jeremy that day. I also felt very impressed that Jeremy needed to see Dr. Gabrielsen (sometimes we will see whoever is available at Wee Care). I called to make the appointment but Dr. Gabrielsen had no appointments available for that day. So I made an appointment with him later that week. I started cleaning the house and felt troubled. I had a strong impression to call Wee Care again. It is interesting looking back. Snoring is not an emergency, yet I felt so strongly that he needed to see the doctor that day. I called Wee Care and the lady on the phone told me that Dr. Gabrielsen had a cancellation and asked if I could be there in an hour. After examining Jeremy, Dr. Gabrielsen said that Jeremy's tonsils were huge! He said it is not an emergency, but he felt like we should get it taken care of as soon as possible. He walked us to the reference desk and asked the scheduler to make Jeremy an appointment with an ENT specialist within the next couple of days. She scheduled us an appointment with Dr. Anderson.
At our first visit we saw Dr. Anderson's physician assistant. After examining Jeremy he scheduled surgery for removal of his tonsils, adenoids, and a tube to be placed in Jeremy's left ear. He said that they normally do not schedule surgery during the first visit, but felt this is an obvious case and it needs to be taken care of. Surgery was scheduled for October 5th. He also prescribed an antibiotic for Jeremy's ear infection (we did not know he had one because he did not complain of pain). During this waiting period Jeremy developed a constant runny nose and started having sleep apnea, and his nose was so congested that he could only breath through his mouth. I called the doctor's office and they changed his antibiotic and prescribed a nasal spray. We saw Dr. Anderson at Jeremy's pre op visit. He asked me if Jeremy was having any pain or fevers. I said no. He said that is unusual. He has developed an abscess behind his left tonsil, which are painful. He told me that since it was late in the afternoon and surgery was scheduled for early in the morning he would take care of the abscess at that time and also do a biopsy, but if there were any changes during the night to take Jeremy to the ER. I slept by Jeremy's bed that night.
The next morning Mike and I were waiting for Jeremy to come out of surgery and it was taking a very long time. After a while they asked us to wait in a room for the doctor. Again we waited and waited....feeling that something was not right. Dr. Anderson came to us and said "I am so sorry. It was not an abscess its a tumor. It is cancerous, malignant. We removed the left tonsil and did a biopsy on the tumor. (They left the right tonsil and adenoids. The tumor had pushed the tonsils forward making them look enlarged, the tonsils and adenoids were healthy.) I asked him "How do you know it's cancer?" He said that it was very obvious and they called a pathologist in to confirm. He told us that we were going to McKay- Dee Hospital for CT scan and x-rays and he would also get us set up with an oncologist at Primary Children's Hospital. We were shocked, confused, uncertain, and afraid of what this might mean. Our hearts were in anguish.
Jeremy spent Wednesday night at McKay Dee Hospital, a night home (I slept by him) and on Friday morning we headed up to Primary Children's Hospital. After CT, MRI, x-rays, and several other procedures. Jeremy was admitted and stayed for 9 days. The tumor was growing so quickly, it had closed off the nasal cavity and the left side of his mouth. Jeremy could only breath through a small opening on the right side. With the left tonsil removed we could easily see his tumor. He ended up spending a couple of nights in PICU because of his sleep apnea.
Jeremy was diagnosed with Rhabdomyo Sarcoma, intermediate risk (because of location), stage 3. Chemotherapy was started on Monday, October 10, 2011. We were told that we were very "fortunate" to have taken him in to the doctor's office when we did. It was a very fast growing and aggressive cancer and the location of the tumor was compromising his breathing. If we had waited only 1-2 more weeks, it would of spread and he would have been stage 4 or we would of had an emergency situation with his breathing entirely compromised. We feel this was more than "fortunate", it was a miracle!
"For I am God, and mine arm is not shortened; and I will show miracles, signs, and wonders, unto all those who believe on my name. And whoso shall ask it in my name in faith, they shall cast out devils; they shall heal the sick; they shall cause the blind to receive their sight, and the deaf to hear, and the dumb to speak, and the lame to walk. And the time speedily cometh that great things are to be shown forth unto the children of men;" D&C 35: 8-10
We are so excited for your miracle. It is so good to hear your good news. Thank you for sharing your experience with us. Our prayers will still be with you and your family. We love you guys!!
ReplyDeleteThis post makes me so happy, Lynnette... I love your positive and attitude of gratitude that you have. I believe in miracles, too, and am thrilled to know that along with medicine and great doctors, as well as much fasting and praying, Jeremy is doing so much better. Love and miss you guys!
ReplyDeleteI believe in miracles!! So happy to read this and so happy for all of you. Thank you for sharing both your experience and your testimony.
ReplyDeleteLynette, I don't know if you remember me, but this is Shalyce Harrison, Jeremy was in my Sunbeam class when I was in your ward, and I ADORE him!!! I ran into Valerie Hansen a while ago, and she told me about sweet Jeremy, and the scary things he'd been going through. My heart was broken, and your family has been in my thoughts and prayers since. And then today I was on The Harris's blog and saw that you had made a blog for Jeremy!!!... What happy news to read on the first post that you have been blessed with an incredible miracle!! I hope the miracles keep pouring in, and your family is surrounded by peace and love. Your sweet family made such an impact on me while we lived in your ward. We talked on multiple occassions about how well you have raised your children, and how we looked up to you. I loved teaching Jeremy. His smile lights up a room. His sweet prayers still stick out in my mind, "Dear Heavenly Father, please bless that we can go fishing, and see the alligators, and..." Too cute! I hope he will be able to get out fishing again as soon as possible. Thanks for sharing your testimony, optimism, and your faith through such a trying time. You're in our thoughts and prayers. -Shalyce & Jordan Harrison
ReplyDeleteThis is a miracle and wonderful news. Thanks for sharing. We all need to hear about miracles happening around us. And thanks for the great attitude. You guys are an amazing family.
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